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Shame, Shame Spirals, Toxic Shame, Carried Shame

Old article addressed Shame and Pride New — and has been moved & will be updated. This article is a . It's long. We're upgrading sections and filling things in while we can.

Shame is one of the more challenging issues for trauma survivors, and affects many people who have C-PTSD very deeply. Please exercise selves-care on this topic, take everything very slowly, and please bring your professional team into the loop if y'all are experiencing shame issues or identify with the issues on this page.

What is "normal" shame?

Shame is a complicated set of fear-reactions based around social survival needs. It specifically monitors threats to belongingness, inclusion, rank & status in our social groups.

It's helpful to examine adaptive shame — we could call it "today shame" or "normal" shame — which is fully rooted in something actually happening right now, and pretty time-limited so long as it doesn't trigger additional shame issues. In essence it says, "If others find out, my social needs may be threatened." Or, others have actually found out, and it's time to make amends or it may affect your social connections.

This shame comes with the message "Oops. I made a mistake; I better fix it." We may be embarrassed or humiliated; these are shame-based emotions. But so long as it's only about what's actually going on in the Here & Now, about this single incident not deep past and other people, then it's "normal" shame. A realistic corrective emotion about something actually happening.

Shame & Human Development

Shame is an emotional reaction developed alongside mobility and language acquisition, typically around 9 months to 3 years old. It's initially an emotional leash that helps parents to alert a child to a mistake before it is deadly, and keeps a child within a certain range of their caregivers. The emotion of shame is tied closely to our need for love & belongingness. Shame tells us that something we have done may go against the rules or violate the ethical boundaries or membership guidelines of those around us, such that we might be expelled from or punished by the community to which we belong, or by those who love & protect us. (see also Social Self-Preservation Theory)

At the earliest age or phase of shame, children start to wander farther from their caregivers, exploring their environment, and as they learn what is OK and what is not OK to do, they develop their first introspective models, before they know why something is wrong to do — "Will doing this get me in trouble?" So a child develops the ability to consider their actions during this time, and judge by past experience whether their choices will be reproached or met with disapproval.

For example: thousands of years ago Caregiver is picking berries and puts Baby down. Baby toddles over to a pretty poisonous berry on a different bush, plucks it and is about to eat it. Caregiver spots this and makes a reproving noise, Baby startles and looks for approval from Caregiver. Caregiver sternly gives "no" noises, Baby feels shame course through its body — breaks gaze and looks down at their hand. Something abut this berry is a mistake that has made Caregiver unhappy, so Baby drops the berry reluctantly. Caregiver makes it over to Baby and congratulates Baby, picking Baby up and making approving noises while giving Baby good berries to munch on. Baby feels fine, and Baby brain associates the poison berries with that shock of shame. Baby won't touch those berries again.

Thus the perceived threat to belongingness adds another dimension to the equation. The child who is reproached or met with disapproval gets frightened at a core existential level (are my supports going to vanish?) — and may be afraid of complete rejection. The appropriate caregiver response to this fear is to comfort the child after correcting a mistake, letting them know that they are forgiven and still are loved or belong to the community. That what they have done is not so egregious an error that they no longer belong or are rejected. This reprimand & reconciliation is part of a child's normal development around shame and helps build a good model of acceptable vs unacceptable behaviors.

Shame & Survival Needs

"Love & Belonging" is a need on Maslow's Hierarchy right above safety & food/clothing/shelter physical needs. It's not really optional — as humans are interdependent beings and we are tribal by nature. Being in a close-knit tribe enhances our ability to survive. Children are born helpless and take a long time to become more independent, thus at minimum — instinctually speaking — need a family or clan unit to thrive. The potential of being exiled or ousted from one's group is thus a threat to survival for a young child.

Shame for children raises panic reactions New for good reasons. It's our internal alarm system for threats that may get us exiled or ousted from our family, clan or tribe.

The "Buddy" Brain theory (by Crisses)

We now talk about the basic 4 panic reactions that are attached to the oldest parts of our brain as "Dino Brain" -- that's fight, flight, freeze and flop -- and they are common with many animal kingdoms.

Shame, however, seems to be a range of reactions that come from social or living-in-groups fears. We liken this to when mammals started living in groups for enhanced chances of survival, such as when there's an ice age. We "buddied up" to be able to store & process more food, take down larger prey, share defense, share warmth, and more.

Buddy Brain shame-based fears are based on maintaining belongingness, inclusion, rank and status with the tribe. These fears monitor and avoid discomforts and dangers of being outright exiled, of losing access to safety in numbers & resources stored within the group, and of being pushed to the outside (even literally, like closer to the cold cave mouth) due to loss of privileges.

The panic reactions we've proposed that seem to be most often resourced by Buddy Brain are fawn, follow, fabricate, fitting, flocking, funny and fuckit. Most of these reactions are meant to maintain or ensure belonging, inclusion, rank or status. Fuckit is Buddy Brain's equivalent to flop -- "I give up, this isn't recoverable, I'm going to resign myself to living in isolation."

It's important to note that (in theory) Buddy Brain is part of the autonomic nervous system, a layer that supplements and is built on top of older layers (Dino Brain) and that both Dino & Buddy Brain are survival reactions that are stuck in the past, and do not understand the modern world.

Buddy Brain cannot tell which group is our most important group for our survival. It developed in a time where we would only have one tribe: your family, your friends, your co-workers, and so on all belonged to one tribe, and even interacting with another tribe was generally brief and it would be pretty clear that you didn't belong to the other tribe. Unfortunately for Buddy Brain, in the modern world we may interact with many separate groups/tribes -- we may have our household, several extended families (our own, and those of our parents, partner(s), plus offshoots for any re-marriages or divorcees, etc.), friend groups, special interest or hobby groups, a group at our school or workplace, many online groups, etc.

We are much more social in the modern world than Buddy Brain is set up for, leading to potential panic-induced tunnel vision if there is a threat in any one of our social groups. Buddy Brain may take over and behave as if one's very existence is under threat, setting off our anxiety or panic, emotional dysregulation, and spinning off whatever panic reactions are close at hand. Meanwhile, the group where we are having the issues might be a casual group we recently joined and barely have acquaintances in. Due to Buddy Brain not understanding how large and convoluted our social world has become, even an encounter with a total stranger can start a shame spiral.

So one helpful tactic is to remind Buddy Brain of who our "real tribe" is -- that these people are "not tribe" -- that our belonging, inclusion, rank & status in our "real tribe" is not under threat, we are safe, our food stores are not threatened, we will not be tossed out into the elements, and we're doing OK. Many of our clients have found this framework to be helpful in redirecting Buddy Brain to have more realistic priorities in what to monitor for social threats.

Raw Shame & Self Isolation

If we do have a fallout with a group, and are ousted, we often have an instinct to hide and collapse in on ourselves, self-isolate, and hide away from people. In terms of the ancient survival brain, it's like we've been exiled or outcast from a group, and have to come to terms with being alone. "I'm going to huddle in my cave with my berries, and try to stay alive." Like we try to make our peace with having lost "all" our supports.

This instinct is based on times long gone. Nowadays we usually have several support groups. Family, online support, friends, distant relatives, coworkers, schoolmates, headmates, etc. And unlike ancient times where relocation alone would be arduous and dangerous, requiring trekking long distances to distant tribes and hoping they would take us in — we have other new groups we can try to belong to very easily now.

Still we may fall into this instinct, and it's good to pay attention when we're trying to isolate ourselves, when we cut contact with people we would normally interact with, when we are sullen and dejected, and go deep inside of our cave. Shame may be lurking in the background, not big roaring shame, not knee-jerk angry reactive shame, but quietly trying to survive in spite of being cut off of supports shame. Even if the loss of supports isn't true, or we have only lost a small percentage of our supports.

Ancient brain only knows 1-tribe that we're almost completely dependent on for survival. And it acts like it.

The best thing to do when tempted to sulk into one's cave (bedroom, blanket fort…) is to reach out to someone and be reassured that you still have supporters and you are not going to have to survive alone.

Toxic Shame

Toxic shame is what we're calling a verbal form of shame we usually get as messages we can't get unstuck from our mind's ear/eye.

This form of shame is one that may be used to manipulate someone — to use power/control over a person's natural shame to leverage it as a tool to gain their compliance. In this case, though, it crosses a line to manipulate people to get what one wants. Bullies use shame as a weapon against children and adults, for example.

When a young child experiences shame, the shame isn't always repaired and reconciled in a healthy way. Some adults shortcut discipline & love (some of the traits proper caregivers or parents should have) by way of power & control instead — and shame allows other people to dictate the rules of love & belonging in a way that shame becomes a stick and belonging becomes the carrot and a child is controlled by deliberate/explicit shaming cycles.

Example: Content notice: messy room.
Our parents called our room a pigsty which implied we were a pig (note: no, we were a child! not a pig. And what's wrong with being a pig anyway?). That's a shame message hence toxic shame. We had to write about that messaging and get it unstuck. In essence, we had to fully own that we were a kid and THEY were failing us, not us failing them. They never supported us learning how to clean our room, and didn't provide us with containers or instructions about how to clean our room.

Carried Shame

Then there's carried shame. Much more convoluted but basically when abusers treat a child wrong, they feel their own shame — and the broken boundaries between that adult abuser and the child victim means the child senses the shame and can't figure out what the child did wrong, and becomes something the child feels is inherently wrong with them, that they deserve bad behavior from others because they're inherently unworthy/bad/wrong/tainted/etc.

This acquired or carried shame (carried like a contagion from someone else passing it along) becomes lifelong feelings of insufficiency and something being "wrong with us" — being a bad person, sinful, etc.

To work on carried shame, we have to learn how children are innocent (externally) so we can internalize how children are worthy, lovable, needy, naive, and deserve love/care/attention/protection. We can fully realize and absorb that we were being hurt and the person who OUGHT to feel the shame is the abuser. There was nothing wrong with us or about us that made us deserve being treated foully by our caregivers or other adults.

Hopefully this helps us to mentally/emotionally hand it back. Truly realize we were wronged, we didn't deserve it, that all kids deserve love & care — and we don't want their garbage shame anymore.

More Details

When adult abusers cross the lines of what their tribe/society thinks is "OK" behavior towards children, they repress their own shame about their actions.

And when repressing shame, usually it's covered up by something else. Often anger, sometimes very deep denial or delusions about reality.

Children are highly attuned (via raw empathy — a lack of emotional boundaries, also their Mirror Neuron Network if you're into the more geeky neurology point of view) to their caregivers and other adults in their environment. Not only do they pick up on the shame, they actively absorb it from the caregivers. It becomes something like an introject (and for those who develop DID or are already plural) and can become its own headmate which we call the shameholder — a specific type of traumaholder who is carrying their abuser's shame.

Shame-Bound (family, group) Systems

[A] shame-bound family is a family with a self-sustaining, multigenerational system of interaction with a cast of characters who are (or were in their lifetime) loyal to a set of rules and injunctions demanding control, perfectionism, blame and denial. The pattern inhibits or defeats the development of authentic intimate relationships, promotes secrets and vague personal boundaries, unconsciously instills shame in the family members, as well as chaos in their lives, and binds them to perpetuate the shame in themselves and their kin. It does so regardless of the love which may also be part of the system. -- Fossam & Mason, Facing Shame: Families in Recovery

We, Crisses, would add to this that a shame-bound group &/or family system is one in which the culture includes the constant threat of loss of belongingness, inclusion, rank or status based on that particular culture's rules of what is and is not acceptable. It's a group culture in which unconditional acceptance is lost to a set of rules that define whether or not one is acceptable and welcome to be a member. Thus the constant threat is to remain acceptable to the group's rules, and hide or edit everything else keeping secrets from the group, so that one is never allowed to be fully authentic while still remaining a member in good standing.

One example of this is a particular culture with "disallowed emotions" -- some family cultures will use shame & control tactics to eradicate certain emotional displays, under threat of retaliation, shunning, or loss of status or privileges.

Example: whenever we would cry our sperm donor's system kid would pull us aside to remind us to stop crying and go splash our face with cold water so that no one would be able to tell we were crying. Sadness was a disallowed emotion, and their system kid was unconsciously afraid of our sadness triggering their own shame defender, so was trying to protect us both.

Control-Release Cycles - Using Shame to Control Someone

Our vulnerability to shame also becomes a mechanism by which people can control themselves or each other. Of course, as plurals, we have both (self-control, and internal headmate control) issues.

We'll bring in Buddy Brain again. It's not lost on humans that Buddy Brain can be exploited to control behavior. We can use self-shaming to push ourselves into certain behaviors, and we can use other-shaming to attempt to control others.

A brief example: We live alone. Let's say we haven't done the dishes in a couple days. We can self-shame by telling ourselves we "Should" have done the dishes, implying we've made a mistake and encouraging ourselves to feel shame about it — we can even lean into it more and punish ourselves or revoke privileges because we "should" be cleaning up after ourselves. "We're not allowed to have fun with our Lego sets because we haven't done the dishes." This is leveraging loss of rank & status, thus a shame-related issue, for something we've done in an attempt to control ourselves.

And this would be something fairly normal, probably something that people have done since before there were written words and cave drawings, so what's the big deal?

Unfortunately this "control" attempt has — like so many things — an "equal and opposite" reaction. First described by Fossam & Mason (Facing Shame: Families in Recovery), and made famous by John Bradshaw (Healing the Shame that Binds You), when someone is under the pressure of a control attempt, there's also an attempt to "release" elsewhere. It can happen simultaneously, or it can be a delayed reaction creating a cycle.

So in our example, we pressure ourselves to do the dishes and withhold enjoyment. Is this going to get the results we desire, or is it going to come with a price? The more we lean into the shame (perhaps name-calling or maybe some toxic shame messages come up from when our parents called our room a "pig-sty"), the bigger the release will be. So we might resist doing the dishes, building up more control pressure, and more feelings of being denied pleasure, and eventually some headmate snaps and plays a game all day rather than doing anything in moderation. Unfortunately this release leads to more shame & us doubling-down in control behaviors, more toxic shame messages, more self-shaming, more restrictions, and bigger release blow-ups.

This cycle ends up becoming something like a see-saw, with perpetual motion of its own. Bradshaw grabbed onto it because he came from addiction recovery, and could clearly see how these control-release cycles played into addiction & addiction recovery.

Here are some common/known control & release behaviors, note they're not meant to be shame-inducing (this would kinda go against the whole point of the article which is to educate folks about these absolutely normal human condition issues, not make them feel bad about having them):

ControlRelease
perfectionismprocrastination
workaholismgambling
restriction (addiction)use (addiction)
criticismemotional dysregulation
self-blameself-harm
facilitate responseflop response

These are just starter examples and not meant to diagnose anyone or to be an absolute exhaustive list. The original lists in the books above, being from the 1980s, are not appropriate today, nor are they exhaustive either. They're definitely informed by the authors working in family therapy & addiction recovery.

The importance here is understanding that when one person (or headmate) is exerting control over another (even themself), there is a bounce-back effect. Doubling down on control is not the answer to this issue. It almost always comes back to finding a release somewhere. Even if we extinguish one undesirable behavior, it often will come back somewhere else.

Personal experience as an example -- after extinguishing Workaholism, we went on an 8 or 9 month Lego shopping spree and spent nearly all our non-appointment-time playing with Legos. We allowed ourselves to do that kinda on purpose, to not shame ourselves, not exert pressure, to allow headmates to front and have some excesses we normally wouldn't have done, to let us "get it out of our system" until we could gently come back into more of a balanced state. Now we are trying to keep an eye on our see-saw's balance between control & release and be careful not to push down on one side or the other too hard.

Shame Spirals

This is where an instance of normal or today shame sets off deeper/older shame in our system — but it's also involving control-release cycles on top of that.

So for example if we make a mistake (drop a glass) and it brings up shame "oops, I made a mistake someone might get mad at me if they find out" this can then bring up toxic shame (instances of being told we're clumsy or incompetent, that we can't do anything right, or that we're a slob or pig, etc.) which in turn may bring up carried shame (feeling like we're a failure, unworthy, wanting to shrink/get small/blink out of existence — which may also trigger selfharm cycles, or sui ideation, etc.). Then we may want to over-control ourselves ("I'll never use a glass again! I'll only use plastic from now on.") which also may bring on release issues somewhere else (perhaps more gaming).

Essentially it's a regression and emotional flashback feedback loop that activates deeper and deeper levels of shame messages — whether those messages are verbal/auditory/written — or if they're emotional shame messages accidentally gleaned from abusers who violated the social contract of how to care for a child properly, or ignites fears around loss of belonging, inclusion, rank or status in some way.

Here's an article we wrote with one C-PTSD shame cycle. We'll eventually add more info here on Kinhost as we continue our dive into shame issues.

Dumping Shame

Before we get to the discussion of pride (below) which is perhaps outdated, there's a few ways to work on dumping & eliminating these toxic & carried shame messages in our lives.

At their essence, they all involve rejecting the shame in a visceral believable way as not being ours. Even verbal toxic shame messages are a form of someone else trying to hand us more-than-ordinary amounts of shame for all the wrong reasons. Neither toxic shame nor carried shame is ours to own & hold. Though the messages got stuck in our brain or body, it really comes down to the shame itself becoming stuck-held forms of being traumatized by others. Others who never should have treated anyone that way.

Children are Fundamentally Innocent & Need Caregiving

Abusing Kids is NOT Ok

Everyone is Valid & Worthy of Attention

Shame Solutions

Shame vs Respect

Shame vs Authenticity

Yeeting Carried Shame

Shame Work Menu

You definitely don't have to do all of these things, but this is a general list of work that can be done (descriptions pending) for shameholders, shame defenders, or systems that have been affected by shame. It's not a prescription, not the only cures, these are ideas we are taking (mostly) from Bradshaw's Healing the Shame that Binds You as placeholders before we have more information.

While these are listed in a general "order of escalation", it's not a prescription and does not need to be worked through in order, and you don't need all of these ideas. People have been working on shame in myriad ways through the ages, and being perfectionistic about it may complicate shame feelings.

  1. Coming out of hiding
  2. Choosing Intentional/Safe "Family"
  3. Sharing Secrets
  4. Feeling feelings
  5. Dumping Shame
  6. Grieving Losses
  7. Acceptance, Welcoming, Belonging
  8. Self-love, self-compassion
  9. Reparenting inner kids
  10. Openly accept & talk about it
  11. Paying it forward
  12. Accepting your authenticity
  13. Empowerment

Old Article

Shame is an instinct or emotional reaction tells us to hide, that it's dangerous to be seen or found out. As such it's a natural instinct gained around the age a child can walk and wander, and makes a child freeze to consider their behavior and what they've done wrong. Natural shame is temporary and healed with proper attention and care from a loving caregiver.

Shame, as a trauma survivor, is an internalized injury from an ego or self-esteem attack. It can happen when a child is made to feel that they are bad, that they are not worthy of being seen. If a child blames themself for something that goes wrong, internalizes it, and is shamed, they feel as if they are not worthy of fitting into their clan, tribe, social network or society. Instinctually this creates a response that to survive (fitting in is an instinctual part of survival) they will have to hide the thing they have been shamed about. That if anyone were to find out how bad or unworthy they are, they would be exiled.

Some might say DID is built on that instinct to hide. That this self-esteem blow could be enough reason that a child can't live with themself and starts to hide the injury even from themself. Internalizing the shame, pushing parts of themself away, the child creates pockets to even hide the shame along with the shameful circumstances. Because being ousted from the support of their tribe is unacceptable. This deep moral injury creates so much conflict it becomes a survival crisis.

As adult survivors, we may develop this deep need to hide, not be seen, and not understand where it comes from. We may act, but feel we are unworthy of attention or love. Hiding can come in many forms, so sometimes it may just help to assume that we have this issue and ask "What am I hiding from?" or "What are we hiding from?" and see what answers arise from it.

The shamed insiders may come paired with protectors and defenders. They may or may not be more accessible than the shamed internal folks.

Ways to address shame include bringing the shame itself into the light. Not necessarily exposing the people, but talking about the fact that the shame is present. Interestingly, this doesn't have to trigger more shame in itself (though it can) because it's not talking about why there's shame; it's not exposing the reason for the shame. Understand that shame is a survival response. There should be no shame in protecting yourselves. Ask yourselves how your shame helps you take care of and protect yourselves.

Another step in dealing with shame is reframing the circumstances more objectively and realistically. If this happened to someone else, would you blame the victim?

Shame is a good situation for recruiting their protector to help take care of the shamed system member. Acknowledging the real blame belongs with the situation or the adults who failed to protect them, dealing with the hurt and traumatized headmate with love and compassion, and helping them to see that they are worthy, and helping them recover from their flashbacks (see Rescue Missions New and our podcast episode about Onboarding Residents).

System-wide, pride is a good foil to shame feelings or a legacy of shame. Those headmates who are able to be prideful can carry the banner of plural, multiple or DID system pride for a while until others are willing to join in. Knowing that you/y'all are valid, that you were a victim, not to blame for what happened, that it's OK to be seen, heard, and loved — are all very important parts of healing the self-esteem and coming out of hiding which are the legacy of this self-esteem injury.

Y'all don't have to go straight from shame to pride. There's plenty of middle ground — healing boundaries, reframing abuse situations and putting the blame on the people or societal structures that disempowered you, or harmed you, and fighting for yourself and others can be helpful milestones on a road between shame and pride.

Shame is a natural emotion. It's a survival instinct, it's adaptive and it's OK to feel shame. Remember that shame is healed by love and compassion, by being understanding, and by putting the responsibility where it belongs and taking responsibility when it really is our fault (but it's not our fault as a child, we mean as an adult).

Sometimes shame is at the heart of self-harm. Balancing out harmful behaviors with new loving behaviors, reaching inwards a little bit at a time to send love and comfort and compassion to the hurt inner child, just a little bit each time, may be able to help.

Going from shame to pride is not a lightswitch. It's more like healing a plant that didn't get enough water. And the answer is love. Sometimes you have to nurse a plant back to health. Dumping water on it and walking away isn't enough. It needs warmth, protection, to be turned towards the light, and cared for.

Consider setting up a re-parenting situation for headmates buried in shame. They need love and to be seen and cared for on a consistent basis over a long period of time.

If you believe a headmate is struggling with shame, and you have a professional team, please bring it up with them if you can. This is a situation where y'all could use a lot of support.

In terms of building pride gradually, the conference session on Plural Activism & Selves-Advocacy talks about going from advocating for each other inside your system and being internal activists through eventually (over time) advocating for yourselves externally and eventually becoming community activists externally — basically the whole journey of standing up for each other internally as individuals through standing up for yourselves individually or as a whole, inside & out.

Credits: Some of the thoughts in this article were heavily influenced by the NICABM Advanced Master Program on the Treatment of Trauma and their shame session, the System Speak podcast's Shame episode (#43), and Dr. Serenity Sercesión's Healing Together presentation on Pride.

Why be proud of your& system?

Here's the answer The Crisses gave to someone who was dealing with hopelessness & despair, shame, etc. regarding having DID:

Teamwork, building our own culture inside, overcoming adversity, making something vilified and stigmatized into a strength, helping others who are struggling with this highly stigmatized, overlooked, underfunded, underdiagnosed, misunderstood disorder.

Sticking it to our abusers by surviving and thriving, loving on our hurt inner kids (we did internal adoptions), watching them grow and change and heal, seeing inner folk constricted by PTSD who blossom and change (showing their full range of interests, talents, personality, etc.) as they become coconscious/come into the Here & Now, fighting for recognition and rights, fighting public stigma, creating community and support structures externally for the community, helping singular folk understand and embrace their DID loved ones, helping people understand plurality vs DID/CPTSD, solving problems, creating resources, improving lives and the world.

We do a lot more than that as a team…we brainstorm and for a while made that a business offering helping businesspeople with brainstorming sessions because we can analyze situations and ideas & run internal scenarios in ways folk who are singular & without CPTSD cannot. So given a situation we can brainstorm and break it down and have an inner team of diverse headmates roll over the issue and look at it from many angles and pour out ideas and solutions and create a strategy/plan for them to solve a problem, improve their product or service, or market their business. We can still do it, we could fall back on it as a business offering if we had to. Anyone here good at this can feel free to try it out. We think this is a major strength of plural systems once they have good internal teamwork and some onboarded rebels to poke holes in ideas, etc. and the world is underutilizing and overlooking our problem-solving talents. Keeping us oppressed is due to fear…but we digress.

We are also continually impressed by the individuals in our system…their talents and accomplishments, capacity for love and care, and contribution. We don't generally take individual credit or ask for individual recognition. But internally we are proud of each other…whether it's that some kids decided to learn watercolor painting and made some nice stuff already, or that the coders in here contributed to open source projects, or that some of us spearheaded the efforts in raising our external kids, etc. We have a lot of accomplishments to be proud of.

If we weren't us, we would be someone else entirely, and all the singular folk are taken. We don't blame ourselves for being victims …that's on our tormentors. We are proud of what we have done with ourselves from the moment we realized consciously that we are many. There were bumps and mistakes and embarrassing moments along the way…

But you know what? That's on the world. Because they didn't have a safety net and handbook or education program for us to work with. Because the experts in 1986 and even today still have their heads up their ass with this disorder. Because society didn't pay attention, it swept people like us into institutions and tried to forget we existed, etc.

So, we have been writing the manual we should have been handed, creating the classes and courses and materials that should have been there for us 36 years ago, and working on waking society up to increase awareness. And we are proud of that too.

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